chances of bad news at 20 week scan mumsnet

And I'm glad I did and she's glad she didn't. It felt like a lifetime to reach our 12-week-scan. It felt so wrong. These were said to be soft markers fo a range of trisomies, 2 of which were incompatible with life. And again, you know, you read all the books and it tells you 'this is the diagnostics', but after a while you don't hear that inside your head any more No, no, no, I'm fine - because everything's perfect. Instinctively, did it feel right? 18-20 week scans provide clinicians with more information than earlier scans because by18 weeks a healthy baby should be larger and better developed. As I waited for the doctor back on the EPU unit. And so, yeah we got to, carried on with the pregnancy, kept seeing the consultant, kept sitting in the waiting room outside, because there was a terribly long waiting time sometimes, depending on what time you had the appointment. He started to scan me with a cold expression, then told me, 'it didn't look good' and that 'my womb looked raggedy'. We've got the same battle scars. Purpose of screening. Read full disclaimer. So carried on with the plans, and, you know, planning for the, another baby to come along and then we went for a 20- week scan which is obviously the big one and very exciting, seeing all the arms and legs and once again everything was going fine, 'Look here's the baby, here's the length of baby'. I can't remember the exact words but she said, 'There might be some fatal problems with your baby'. In some cases concerns in utero fix themselves sometimes needs treatment. It felt like a lifetime to reach our 12-week-scan. Not a good sign in a hospital consulting room. And everybody knows and everything is right. Saturday came. It was probably all right but hadn't had any fluid in it at the moment. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. If this happens, you will be offered one further scan by 23 weeks of pregnancy. So I suppose from that aspect, mind you having not been told that or sitting there, I wouldn't have thought necessarily that was odd. Thick milky discharge at 14 weeks.tmi pic attached. I had to wait yet another sleepless night. While some parents understood the clinician's restraint - even when they had to wait an hour or more for a definite diagnosis - others disliked being kept in suspense and wanted to be told what the clinician was thinking. I had never imagined having an amniocentesis. At first the closeness came through a sense of guilt. My partner spent the weekend trying to convince me that things were OK. But she told us, she told us, she gave us some more detail, she said, 'There's this, there's a big gap in the brain where there shouldn't be'. How common is it to find anomolies at the 20 week scan? - Netmums My belly was growing and I was feeling great. It can be such a shock so do whatever you need to feel better. At that point, I got very not upset but quite sort of strongly severe sort of with the people at the hospital saying, 'Look, you know, that's 24 hours, possibly a 48 hours' wait - that's not something that's tenable. And then, so I went to my next scan, which was the 20-week abnormality scan, and we took our first child with us, I think he was 17 months old at the time. Being generous and kind generally happens only when you're happy. And they took us out of the scanning room, into a more quiet room while they typed up the report. I don't know how we got through the next couple of days. And, sometimes, I wish I had invited my whole family into the hospital room to see him. In order for the sonographer to get good images of your baby, the scan is carried out in a dimly lit room. You've had, you've had your Down's Syndrome check and that's okay. There is always a chance that a baby may be born with a health issue that scans could not have identified. We don't know, but it's not looking good'. The 18 -20 week fetal anomaly scan is a watershed in most pregnancies because for the majority of women it will be the last time they are scanned before giving birth. But here I was, minutes later, lying down, waiting. Abortion has never raised any moral dilemmas for me and I am an atheist, so there are no religious issues. I had an appointment with my consultant 2 days later, and again he said, you know, 'Very common - shouldn't worry about it too much, you know, if, the problem is if they find anything else wrong'. And they, sort of two of them were looking at the scan machine and then they sort of switched everything off and said, 'Oh, I think we have, might have a problem'. No one else attended and we didn't have a service. I remember thinking, 'Gosh' I now know it was a girl, I didn't know that then, that, 'She looks just like her brother'. All my instincts were to protect my belly, yet here I was allowing someone to stick a huge needle into it. An appointment should be arranged as soon as possible and ideally within three working days. Many parents were shocked by findings from the 20-week and later scans. The Royal College of Obstetricians and Gynaecologists (RCOG) have produced a report on Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales (May 2010). Why me and not you, you bastard? It was real. All pregnant women should be given the booklet by their midwife or GP Screening tests for you and your baby by Public Health England, which gives detailed information about the types of scan offered and what they are looking for. So we decided to book an early 10 week private scan. He suggested he perform an amniocentesis immediately, to rule out any chromosomal problems. So even if anomolies are found, they don't always mean a problem.. x. I had issues at the 20 weeks scan with both of mine. So we hid in our house. The anomaly scan, also called the 20 week scan or mid-pregnancy scan, is used to detect pregnancy irregularities significant in diagnosis of any of the following conditions: In most instances no serious issue will be found during the scan and many parents-to be will come away knowing that all is progressing nicely and, perhaps, having found out . To help us improve GOV.UK, wed like to know more about your visit today. And it turned out the baby's heart wasn't forming properly, the chambers weren't forming properly. I believed at this point I had miscarried, they wanted me to come back I'm for a follow up scan. A black and white picture of your baby will then be seen on the ultrasound screen. In some very serious rare cases, where no treatment is possible, the baby will die soon after it is born or during pregnancy. What are the chances of bad news at the 20 week scan | Mumsnet To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk. Which is what I'd seen. I just feel very unlucky. After preparing myself to face having to take the medication. Chances of bad news at 20 week scan mumsnet We've joined the grown-ups and we both feel very different. If one of the conditions is found or suspected, the sonographer may ask for a second opinion from another member of staff. We'll make an appointment with the senior sonographer, the consultant at the local hospital, and she'll do your scan and she'll be able to tell you more things'. So she said, 'Come back on Monday. Away you go'. 11 physical conditions (20-week scan) - GOV.UK Others, including those who had been given leaflets to read about the scan beforehand as well as some who were health professionals, said that they had been nave about the 20-week scan. We were convinced everything would be OK. Health professionals use the 18-20 week scan to examine the baby's size and position, and also to check if his/her brain, heart, lungs and other internal organs are developing as expected. But I still didn't want to be the one who stopped this baby's chance to live. Any delay in receiving more information about the abnormality and its implications will be distressing for women and this should be acknowledged. Previous scans in this pregnancy and with my first child had been fun - a chance to see the baby wriggling around and perhaps find out its sex. I want to be happy again. And, for a few hours, I'm convinced I've made a terrible mistake. The week that followed was an agonising wait. And I can, the words that the scanning member of staff used, "Everything's fine", will stay with me forever. I swallowed the tablet and we left the building. I couldn't really believe what they were saying. It is essential that all practitioners performing fetal anomaly ultrasound screening should be trained to communicate abnormal findings to women, as such information is likely to have significant emotional impact. I know I could have delivered him in a quarter of the time, but I couldn't bear the thought of him leaving me. See more information about the 20-week ultrasound scan. My mum arrived early to look after our son, and my partner and I got a cab to the hospital. By 7pm, I still hadn't delivered the baby. I tried to keep positive. And you know, we were laughing and joking. And I knew there was no way out. Do you have any thoughts about that? Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might have a problem. I took my vitamins, stuck to the healthy diet and put on a brave face. The doctor or midwife looking after you will let you know before you come. My partner went out with him, wanting to see him. Sometimes women were told that the sonographer had found a 'marker' or sign of a chromosomal condition and had to wait for an amniocentesis to confirm the findings. Living in this world must be unbearable for them. Just doing it. Dont include personal or financial information like your National Insurance number or credit card details. But he was not sure. And they took me to another room and they explained that the baby had what they thought was ventriculomegaly or something. 'I was having nightmares and panic attacks. Picture every packed football staduim up and down the country - all healthy pregnancies and births. If you think you may have a medical emergency, call your doctor, midwife or hospital immediately. So that was it. But other than that everything was fine. We talked about the different sorts of pain relief I could have and I opted for a morphine drip, which I could control. And I remember, the first thing I remember when something might be wrong, was I saw, I finally, we finally saw an image of the skull on the screen, and there appeared to be a sort of black hole shape in the middle. Baby loss support I get terribly irritated by my close friends and family. And the first few things they said it didn't sound as thing, as though things were terribly wrong. Back on the EPU unit, a doctor organised for me to be admitted into the ward, to take the medical management under supervision as the sac was now to big for me to safely miscarry on my own at home. Thinking back, I don't know how we left without him. And I wish that I'd been told at that point, that somebody had actually turned round to me and said, 'Look, I'm sorry, but I think there's something very wrong. But I was struggling mentally with the anguish, grief and endless hospital visits. 15/02/2014 08:02. And I thought that if I were faced with the possibility of having an amnio, hours of discussion would follow - I would spend days mulling it over. For women who have been given distressing news about their baby during the scan, there should be a health professional available to provide immediate support. And, so they sent me home at that stage because they said the specialist wasn't available till the following day, which was awful. And I am slowly coming to terms with what has happened. I think there might be a problem'. We needed closure, to allow us to grieve properly. There were also two spots on his heart, which were "soft markers" for Down's syndrome. Thankfully I was met by an amazing sonographer, she was compassionate and understanding. The doctor didn't come. We went, I went in to the scanning room and they're quite bland facially anyway, whether everything's fine or not they just look at the screen to start off with and do measurements but I very quickly realised that the woman's demeanour wasn't, even for a bland face, was concerning. Our nightmare began when I went for my 20-week scan. So, in the end, we said we would arrange our own funeral. For example, the babys brain, kidneys, internal organs or bones may not have developed properly. The next day, it was confirmed that my bloods had again dropped. Severe chromosomal conditions such as Edwards' syndrome are now often picked up in the first trimester antenatal screening but itwill usually be more obviousat the 18- 20 week scan, though usually a firm diagnosis will not be made until one or two specialists have weighed up all available evidence about the baby - which usually means that another expert needs to scan the baby again, or until the woman has had an amniocentesis. . And how wrong could they be? The doctor explained the options I had to manage my miscarriage. Finally, Monday came and we went back to the hospital. blood tests, CVS) were clear - and as one woman put it, 'after the triple test* (Down's syndrome screening) you stop thinking anything can go wrong'. Public Health England (PHE) created this information on behalf of the NHS. We were denying him his life. Wishing to be anywhere, but here being told the same agonising truth over and over again. I came back probably about 17 weeks pregnant and had the anomaly scan at 20 weeks and like most people expected everything to be fine and to come away with a lovely picture but unfortunately that isn't what happened. We use some essential cookies to make this website work. Cardiac surgery can do some amazing things. Wed like to set additional cookies to understand how you use GOV.UK, remember your settings and improve government services. At first, I still had to deal with the physical implications of having given birth. But they didn't. And as soon as she said those words, both of us were like, 'Well what's wrong?'. And so this one can't tell you anything, it's pictures, you're going, you're going to see your baby, you're going to get pictures. And it all seemed so near at hand, you know, 31, 30 weeks, you feel like you're nearly, you're on the home stretch. On January 18, my baby was born, at 23 weeks - a little boy. It wasn't measuring at all the right measurements for the age - there was a heart defect, the limbs were sort of distorted, the arms were, you know - you could see that the arms were very sort of contracted, the hands were contracted. I want to be nice again. So obviously quite relaxed. We need to have your opinion'. 20-week ultrasound (anomaly scan) - BabyCenter Australia . 12/12/2012 22:41. So we had to go in and out a couple of times, and we were just waiting around for ages and ages. I couldn't bear to see the baby and asked the midwife to take him away immediately. So we went back the day after Boxing Day, the 27th, and the consultant greeted us, which made my alarm bells go, and she started scanning us and I think her lines were, 'What concerns me about this baby is that they've got a diaphragmatic hernia, which has meant that part of the stomach of the baby was in its chest cavity.'. She didn't want to see the baby. I was wondering if anyone has been is this situation and can give me a glimmer of hope. I tried to show him the notes and the photos. . I felt more informed, and I felt that that was what I needed in my head to see you know, that I've got to accept now that this, all these things are real on the screen and this was really my baby that's suffering all these things [sighs], but I was sad as well. Not surprisingly, people aren't quite sure how to deal with me. You may need to have a full bladder when you come for the appointment. Wishing to be anywhere, but here being told the same agonising truth over and . I felt empty, scared, guilty and incredibly heartbroken. And my husband, we never got to sit next to each other in the consulting room, my husband was across the room from me, and I was sat next to the consultant, and we were laughing and joking with him about, you know, the home delivery, and everything was going to be, 'Are you still on for the home delivery?' She just said, 'It's a bit short, it needs to be checked' again basically. 18-20 week scans provide clinicians with more information than earlier scans because by18 weeks a healthy baby should be larger and better developed. So we went home, me to rest in an attempt to prevent miscarriage, my partner to reassure us both. I felt sad, but not the complete devastation of the last scan as they had seen a change of some sort. Health professionals use the 18-20 week scan to examine the baby's size and position, and also to check if his/her brain, heart, lungs and other internal organs are developing as expected. The pain was excruciating, but nothing compared to how I felt inside. Those two weeks were agonising for us both. It took 20 minutes to push him out. It was the end of January, very end - about the 29th - I'd gone into, I'd gone into 5 months by then. Severe chromosomal conditions such as Edwards' syndrome are now often picked up in the first trimester antenatal screening but itwill usually be more obviousat the 18- 20 week scan, though usually a firm diagnosis will not be made until one or two specialists have weighed up all available evidence about the baby - which usually means that another expert needs to scan the baby again, or until the woman has had an amniocentesis. So had to come back in a week's time for a scan, which again is quite a common thing I found out. She describes having to make a momentous decision very quickly, and the ferment of relief, guilt and grief that followed, Original reporting and incisive analysis, direct from the Guardian every morning. It was just sort of deadpan faces, very serious looks, someone else coming to check. I went away and came back, and she couldn't get a good picture. But with time although we will never forget, I know we will be ok again. So instead, I was advised to go home and let nature take its course. We bought little outfits, teddies, and researched all the vitamins and foods that I could eat. And then all of a sudden, I was still laughing and we were all very upbeat, and then suddenly, he suddenly said, but I was still, still laughing, and he said to me, 'Oh, there might be a problem, there might be a problem with the, I think this baby has hydrocephalus'. He wanted to talk about it, but I didn't. This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. I was booked back in to discuss management options, if nothing had happened. Some people we talked to had not had a 18-20-week scan, either because their babies' abnormalities had been detected by earlier . But worse was to come. An hour passed and I started to panic. When I told him what had happened, he refused to believe anything was wrong and said he'd sort it out when he came home. I could hardly breathe. It was far too much power; neither of us wanted it. I had to be rescanned latter. We decided that we wanted medication to help me. I have a terrible hatred of pregnant women and a new respect for infertile couples. I ran into the bedroom to tell Sam, who was ecstatic. I know its hard- but i really wouldnt worry about it too much as the worry will stress you and your body out. And, faced with feeling sorry for myself or feeling sorry for my child, I know which I'd choose. You might be offered another test to find out for certain if your baby has one of the conditions. There was complete silence during the scan. After she had taken all the measurements, the sonographer told us that she was concerned with the length of the baby's limbs in relation to the head. Looked exactly like our two year old as a baby. When I see a child with Down's syndrome, I have a tremendous need to explain myself and apologise a million times over. I should stop being dramatic and pessimistic. The scan yet again confirmed things were not good, however the sac had grown. And I can just remember flashing a look at you as if to say, 'Have I made a mistake here somewhere? It is also sometimes referred to as the mid-pregnancy scan . Limitations of the 18-20 week scan And I know I can't hurry up the process of grieving. We'd sort of put those discussions to the back of our mind, and then all of a sudden there are other abnormalities so yeah it was a bit a bit of a shocker [laughs]. He felt doing more blood tests would only cause me more discomfort and false hope. It felt as if we'd gone underground, that we were part of the criminal fraternity. Getting through the 20 week scan - My BabyManual I wrote a few things down last night when we were trying to go over things, just to remind myself. What would we like to do with the body? So I lay on the bed and my partner sat next to me. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here). Because, when you're angry with the world for dealing you such a shit time, you begin to hate the people who populate it. He had to come to the decision by himself. So we gave up and said we'd arrange the funeral ourselves. Can you describe the difference between the scan at this later stage in a pregnancy? My partner's face was lit up, seeing the baby for the first time. I remember thinking, 'that doesn't look quite right'. But it was very evident. I mean the lady who was scanning was very quiet for a long time. So he was about two weeks smaller than what he should have been. Very occasionally this second scan cannot be completed, for example because: In this case you will not be offered another screening scan but you will offered an all over physical examination for your baby after birth. So we decided that, to have the scan and we went along I think early in the week for that, and spent quite a lot of time with the consultant after that. All the time, the baby was kicking and I felt like a murderer waiting to strike her victim. So it was quite common, this is what happens. I couldn't have the added responsibility for changing his mind. Impact of the 20-week and later specialist scans The appointment usually takes around 30 minutes. It will take only 2 minutes to fill in. Entering the labour ward, I waited for someone to say, "Go home, you are 16 weeks too early." Parents get a chance to emotionally adapt to news and plan. I went home feeling crushed; Sam and I both felt helpless. As two youngest siblings, we were both permanently stuck in the irresponsible, childish role. 2022. After the triple test you stop thinking, you stop thinking that anything can go wrong. I had no idea if we were doing the "right" thing. The clinic advised a follow up scan the week after, to check on progress and to see what to do next. I want to enjoy my son again, without any reservations. So once again we were right back down, really no, really not knowing what to expect. There is more detailed information about the main conditions that are looked for during this scan on NHS.UK. So at 20 weeks I went for my scan with my husband, with my daughter, to get our photographs. Good luck has not come easily over the past few years. So choroid plexus cysts on their own, no problem, but if there's something else wrong, then that's a problem. By this time, we were tired. For once in my life, I had been organised. And that was extraordinary to see the detail that that could offer. We walked all the way home. So I took the test and jumped in the shower. We understand the real meaning of "shit happens". Specialist scans had a powerful effect on some parents because they could see the baby more clearly and in some cases people recognised which parts of the baby's body were not working properly. It seemed inconceivable that we would not be having a baby in May. I was sat on the sofa working, my son was at nursery and my partner was in the bath. Spina bifida can usually be seen clearly on a scan and of those babies who have this condition, around 9 out of 10 (90%) will be detected. Let a mum know you're thinking of them send one of our personalised Mother's Day cards today, Home You will be able to discuss this with your midwife or consultant. I had hope that the little bumps inside me were fighting just as much as I was to stay with me. The same anticipation. And attribute some blame to them. However painful and traumatic the labour was, it was better than what would happen at the end of it. My partner tried to remain calm, and at my request rang my mum. So I was, they couldn't actually finish the scan then, the baby was moving around too much, so they couldn't scan the heart and the stomach. The doctor gave her consent, and I took the four little tablets. Usually, sonographers will ask a senior sonographer colleague to confirm findings and this should be done immediately. After that I got, I, it was about in, in 19-, hang on a minute, 2001 I got pregnant again, slightly unexpectedly. To comment on this thread you need to create a Mumsnet account. The following is a quote from their report: If the scan reveals either a suspected or confirmed abnormality, the woman should be informed by the sonographer at the time of the scan. There was cause for concern. After half an hour of lying on the bed, I was starting to get nervous, but was excited to find out that the baby would be a boy and that I could see his little heart beating strongly. I wasn't unduly worried at all. We felt as if we were in limbo. No, we really didn't, with hindsight we probably should have, but not at all, it never occurred to us to be worried about it. I have horrible thoughts. You will then be asked to raise your top to your chest and lower your skirt or trousers to your hips. Laura miscarried her twin babies in February. I would be put to sleep, and when I woke up I wouldn't be pregnant any more. There was an extra digit on one of the hands. My heart goes out to you OP. And my partner and I would have a completely different life from the one we'd imagined. Mm-hm. As I was called for my scan I was nervous and emotional. Went back a week later for the scan and, you were with me for this one, weren't you? This might be uncomfortable. If you are not sure, you can contact them and ask. What were babys measurements at 20 week scan? The screen may be directly facing them or at an angle. As I lay down, and the sonographer started, I could see there was something wrong. I did. Sam followed and I broke down. I didn't sleep that night I don't think. Sam squeezed my hand and told me it was ok. The scan will look in detail at your babys bones, heart, brain, spinal cord, face, kidneys and abdomen. Emma was 20 weeks' pregnant when a routine scan revealed that the baby she was expecting had Down's syndrome and heart problems. So we went home really and I sort of had to think about it all night.